"When words cannot provide the solace we need or express the joy we feel, when it is simply futile to attempt to explain that which is unexplainable, when logic and reason cannot yield adequate understanding about the injustices and inequalities of life, when mortal experience and evaluation are insufficient to produce a desired outcome, and when it seems we are so totally alone, truly we are blessed by the tender mercies of the Lord and made mighty even unto the power of deliverance." -Elder David A. Bedmar

Tuesday, May 31, 2011

Perfect Days

My new favorite Quote:

"You can't live a perfect day without doing something for someone who will never be able to repay you." ~John Wooden

I loved this quote when I read it this week. I loved it because I realized pretty quickly how lucky I am! I have had many, many, many perfect days!!! In serving my children, especially those with disabilities, I am serving the Lord. Their need is my blessing. And I am so privileged to be their mother and to receive the blessings that come with that calling. It is a quick post, but just wanted to share that thought today!!

May you all have a perfect day, today and every day!! Love to all!

Sunday, May 22, 2011

April Showers Bring May Flowers

So many changes for the month of May! One thing our family is not....stagnant!! LOL We are ever changing, ever streaming, ever evolving. I suppose that is a good thing. At least it has been this month.
First thing first, my little Stephen had to have a shunt revision. We went to our usual bi-annual Spina Bifida clinic visit and were surprised by the neurologist telling us "Stephen's shunt has come apart". Within a few days, we were at Texas Children's Hospital having surgery. Stephen was a little trooper, and he only had to stay one night in the hospital. Of course, then we had to give him a buzz cut because he had a huge shaved area on the side of his head! It is a good thing he looks so cute with a buzz! Stephen is almost done with the school year and his birthday is June 3rd. He will be nine years old! It is hard to believe. It seems just yesterday that he was this little toddler running around pointing his finger at everyone saying "I BUSY!"
Stephen is still a busy boy, and is growing into a wonderful young man. He is precious to us, and we are so happy to have this sweet little boy in our family! LOVE HIM!!
My Chrissy spent the month of May staying healthy and working on her physical therapy and occupational skills, as well as learning how to eat orally again with her speech therapist. Friday she ate a whole toddler meal (pasta pick ups)! It is wonderful to see her enjoying the taste of food, and learning to manage it in her mouth without coughing and gagging! What a miracle she continues to be! She has made a believer out of so many doctors and people around the world! She is my inspiration, and I am so happy to say that I have joined with five wonderful ladies, to help spread awareness and education about Hydranencephaly (Chrissy's primary diagnosis). We are forming a non-profit organization called the Brayden Alexander Global Foundation for Hydranencephaly. Please check out our facebook page and our website just being created at http://www.hydranencephalyfoundation.org . I am proud to be a part of this exciting new endeavor and wish to thank Alicia Harper for founding the organization. You can read about her journey with Brayden, who also has hydranencephaly, by clicking here. Thank you Alicia for inviting me to participate on the Board of Directors!
So, now on to Katie, who has been working very hard to pull herself together and getting ready (for the second time) to leave for the Army. Most of you know she was supposed to leave in February but got delayed. She left on May 17th for Fort Sill, in Oklahoma. After a couple of tearful phone calls while she was in processing, she has soldiered up (pardon the pun) and is ready to complete Basic Training over the next 9 weeks! She will then be in San Antonio for her Advanced Training as a Mental Health Professional. We should be able to visit her on weekends once she is in San Antonio!
Andrew and Dana are also going through a change this month! Their whole life plan got turned upside down by the Army! Due to unforeseen complications (i.e. Army Red Tape and lack of co-ordination between Alaska and Alabama), Andrew will not be able to continue in flight school. He is very disappointed, but seems ready to move on quickly to his next plan of action! I am proud of his resilience and ability to look beyond the present disappointment and see his whole future still stretching out before him! He had already completed Officer Training and that will not be taken away from, so he will still be a Warrant Officer but will change to a career in Logistics instead. I think it is a good match for him, as he is very organized!
The exciting part for me is that Andrew and Dana will be moving to Texas!! I am so excited to have them come "Home"! They will be in Houston for a bit, until all this gets sorted out and hopefully will be able to stay close to us!
Kevin and I are thankful for each of our children. The Lord has blessed us indeed. We have decided to pursue a license to be foster parents/adoptive parents in Texas and have started getting our paperwork together for this. Taking a new CPR class on Monday as we need to re-certify. So Lord willing, we will be blessed with more love and joy, and be placed with another child we can call our own for Eternity. I know Emily is smiling down from Heaven, approving this decision, as I can feel her joy and happiness that her mommy and daddy will continue to honor her memory by sharing love with more children in need of a forever family!
Can't wait to see what the summer brings to the Mason family!