Today was a very busy day for us. Kevin stayed with Chrissy while I took Emily for her genetics appointment (part of her eval for the cochlear implant). Afterwards, the Cochlear Implant Counselor met with Kevin and I to teach us about Cochlear Implants and all that they entail! Boy, is it ever complicated! Just the counseling took four hours! But the good news is that we are almost done jumping through all their hoops and all the testing is just about complete. They have accepted Emily onto the candidate list and hopefully she will be getting her Cochlear Implant by early summer! I am so excited for her as she wants to hear and talk so badly! She uses what little hearing she has to the fullest extent and her teachers are amazed that she talks as well as she does with so little hearing to work with.
Now for the bad news.....Chrissy is not doing so well this evening. She has spiked a fever (104.9) and her heart rate is staying way up. She has been started on an antibiotic and had her trach suctioned and ties changed tonight as well. She is pretty uncomfortable tonight and alternates between little seizures and chills. Please keep her in prayers! We were hoping to move out of PICU tomorrow, but don't think that is gonna happen now! I think we will be here a couple more days yet. She is a trooper though and is hanging in there.
Meanwhile, Stephen is not feeling well either. Not sure if he is relapsing on his flu and strep, or what is going on. I am worried about him. He just doesn't seem "right" to me. His dad is taking him to the doctor tomorrow. When it rains, it pours......
Take care everyone. More tomorrow. It is 2:30 am here at the hospital and I am going to try and get a little sleep!
Welcome to the Mason Family Blog. Our story, our family, our happiness and our sorrows. Our journey through earthly life with all the joy and all the pain and all the faith and love needed until we return to Heavenly Father's loving arms....
"When words cannot provide the solace we need or express the joy we feel, when it is simply futile to attempt to explain that which is unexplainable, when logic and reason cannot yield adequate understanding about the injustices and inequalities of life, when mortal experience and evaluation are insufficient to produce a desired outcome, and when it seems we are so totally alone, truly we are blessed by the tender mercies of the Lord and made mighty even unto the power of deliverance." -Elder David A. Bedmar
Oh poor Chrissy and Stephen. Lots of prayers for them both. Great news about Emily though!
ReplyDeleteThinking of you all.